It's difficult to describe our day. Unfortunately, we were the victims of a huge lack of communication among our medical team. To make a very long, confusing story very short....we know nothing new. Dad's oncologist was ill today and his replacement was....um...ill prepared. He was unable to provide any information regarding the most recent images, labs, or radiology reports. While this, naturally, was very frustrating, there were blessings in the chaos. Dad's labs looked much better and he received a treatment of gemcitabine intraveneously (which we were not expecting). Dad's typical oncologist will be following up with us within the week. So....the waiting game continues.
Here's a cute story...after dad went back to have his chemo, Uncle Craw, Tim, Mom, Ben and I left to get something to eat. We were outside-almost to the parking lot and Benjamin turned around and started running back toward the automatic doors. I grabbed his hand and said, "No, we're going bye bye to eat lunch." He continued to protest, "No" (his favorite new word). So, I let him walk through the automatic doors and followed him as he headed back into the empty waiting room. He turned sadly to me, lifted his little arms and said, "PawPaw?" He thought we were forgetting to take his PawPaw with us to lunch. He was only satisfied after I took him into the Infusion Room to see dad. He gave him a hug and waved bye bye happily to him, and off we went to lunch. He is only 16 months old, but is already such a sensitive child.
Many of you have expressed difficulty leaving comments on this site. I changed the settings today, so give it another try and let me know.
We're all very tired tonight. Have a good one.